ESPE Yearbook of Paediatric Endocrinology

ESPE Yearbook of Paediatric Endocrinology

ISSN 1662-4009 (online)

Published by BioScientifica
Previous issue | Volume 18 | ESPEYB18 | Next issue

Yearbook of Paediatric Endocrinology 2021

6. Differences of Sexual Development (DSD) and Gender Dysphoria (GD)

Patient Related Outcomes

Previous section
Basic and Genetic Research of DSD
Table of contents
Next section
Reviews with Clinical Impact for DSD Care

ey0018.6-7 | Patient Related Outcomes | ESPEYB18

6.7. Young voices: sexual health and transition care needs in adolescents with intersex/differences of sex development-A pilot study

N Callens , BPC Kreukels , TC van de Grift

J Pediatr Adolesc Gynecol. 2021 Apr;34(2):176–189.e2. doi: 10.1016/j.jpag.2020.11.001 https://www.ncbi.nlm.nih.gov/pubmed/33181339This study explores the well-being and sexual health needs of contemporary youth with a DSD. It is a small scale, mixed methods study by specialized DSD psychologists-sexologists in a sample of w...
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ey0018.6-8 | Patient Related Outcomes | ESPEYB18

6.8. Do parents really know best? Informed consent to sex assigning and 'normalising' treatment of minors with variations of sex characteristics

P Cannoot

Cult Health Sex. 2021 Apr;23(4):564–578. doi: 10.1080/13691058.2020.1785012.. https://www.ncbi.nlm.nih.gov/pubmed/32876546This paper, by a human rights researcher, explores how European law systems, by their conceptualisation of sex as a binary construct, may favour medical interventions in children with variations in se...
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ey0018.6-9 | Patient Related Outcomes | ESPEYB18

6.9. Early Genital Surgery in Disorders/Differences of Sex Development: Patients' Perspectives

E Bennecke , S Bernstein , P Lee , TC van de Grift , A Nordenskjold , M Rapp , M Simmonds , JC Streuli , U Thyen , C Wiesemann

Arch Sex Behav. 2021 Apr;50(3):913–923. doi: 10.1007/s10508-021-01953-6. PMID: 33712989This paper describes a patient cohort study of 459 individuals with various DSD diagnoses, as part of the dsd-LIFE study. Patients were included at 14 different sites in 6 European countries.Genital surgery has been increasingly questioned in the past decade. Both the timin...
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ey0018.6-10 | Patient Related Outcomes | ESPEYB18

6.10. Participant- and Clinician-Reported Long-Term Outcomes After Surgery in Individuals with Complete Androgen Insensitivity Syndrome

Duranteau Lise , Rapp Marion , van de Grift Tim C , Hirschberg Angelica L

J Pediatr Adolesc Gynecol. 2021 Apr;34(2):168–175. doi:10.1016/j.jpag.2020.11.012. PMID: 33248216The authors report the long-term outcomes of 71 patients with Complete Androgen Insensitivity Syndrome (CAIS) in the multicentre cross-sectional dsd-LIFE study. Patients were included at 14 different sites in 6 countries in Europe. This is one of the largest long-term studies on CAIS and is of interest to clinicians who manage girls and women wi...
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Published by BioScientifica

ESPE Yearbook of Paediatric Endocrinology
ISSN 1662-4009 (Online)
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