ISSN 1662-4009 (online)

ey0021.13-8 | Endocrinology | ESPEYB21

13.8. Experiences and challenges with congenital hypothyroidism newborn screening in Indonesia: a national cross-sectional survey

AB Pulungan , HA Puteri , M Faizi , PL Hofman , A Utari , JP Chanoine

Brief Summary: This cross-sectional survey of healthcare professionals and administrators in Indonesia investigated the many challenges raised during implementation of a national newborn screening program for congenital hypothyroidism (CH).Despite initiation of Newborn Screening (NBS) for CH in Indonesia between 2000 and 2010 and expansion more recently, only 2.3% of newborns were screened in 2022. This national survey aimed to identify barriers to wider...

ey0018.13-7 | Endocrinology | ESPEYB18

13.7. We all have a role to play: redressing inequities for children living with CAH and other chronic health conditions of childhood in resource-poor settings

K Armstrong , AB Yap , S Chan-Cua , ME Craig , C Cole , V Chi Dung , J Hansen , M Ibrahim , H Nadeem , A Pulungan , J Raza , A Utari , P. Ward

Int. J. Neonatal Screen 2020; 6: 76. doi: 10.3390/ijns6040076– CLAN (Caring and Living as Neighbours) is an Australian non-governmental organisation (NGO) committed to a rights-based approach to optimizing quality of life for children and young people living with CAH and other chronic health conditions in resource-limited settings– This paper used exploratory case study as a method t...